PAI is the Irish national organisation supporting all those with Parkinson's, and their families, carers, health professionals...

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1 EPDA SURVEY - PLEASE DO IT! on 21/6/2010, 9:34 am



The EPDA Charter launched in 1997 on the first World Parkinson’s Disease Day states that people with Parkinson's disease have the right to:
1. Be referred to a doctor with a special interest in Parkinson's disease
2. Receive an accurate diagnosis
3. Have access to support services
4. Receive continuous care; and
5. Take part in managing the illness

This European survey is the first part of a three-part survey being carried out by the EPDA over the next three years. Its aim is to look at how the ambitions set out in the Charter have been embraced since its launch twelve years ago, and to determine what difference the Charter has made to the overall management of Parkinson’s across Europe. Part one examines whether the first two points of the Charter are being met across Europe in terms of accurate diagnosis and access to a doctor with a special interest in Parkinson’s disease. Your answers will be invaluable in helping the EPDA and the PAI and the other national Parkinson’s organisations to understand the level of care provided to people with Parkinson’s and their families in Europe. The survey is OPEN from 12 April 2010 (European Day of Action) to 29 October 2010.

CLICK on the link below to start the survey. This link will take you to the EPDA website Survey page.


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