Cathy you caught me on a good day. If I am tired or stressed my Parkinson's is worse, so I am finding I have to behave!
What can I say that will make any difference to your situation? Not a lot, except that I have been there and then some. The anger never leaves me, and despite my good fortune with DBS, I cannot look very far into the future because Parkinson's does not stop getting worse after DBS so it will catch up again. Fingers crossed for something else available by then.
I spend a lot of my time looking in neurology related websites including journals - medical journals, with the help of a med dictionary. Looking for hope...
One positive - the friends I have made from all walks of life, people who have touched my heart in many ways, most with Parkinson's, but not all...