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A new forum!

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1 anger on 10/11/2009, 4:25 am

Ann

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Lucy I could do with your attitude!

http://www.parkinsons.ie

2 Re: A new forum! on 10/11/2009, 1:12 am

lucy

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I have never been angry (mabey i am ignoring it hoping it will go away)My way of coping is accept the things you cannot change and do your best to live a half normal life. When I am out and about I see people worse off than myself, and a person has said to me " if I was like you I would not go outside the door" but she was really not beign hatefull.

3 A good thought on 10/11/2009, 12:07 am

Ann

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Cathy you caught me on a good day. If I am tired or stressed my Parkinson's is worse, so I am finding I have to behave!

What can I say that will make any difference to your situation? Not a lot, except that I have been there and then some. The anger never leaves me, and despite my good fortune with DBS, I cannot look very far into the future because Parkinson's does not stop getting worse after DBS so it will catch up again. Fingers crossed for something else available by then.

I spend a lot of my time looking in neurology related websites including journals - medical journals, with the help of a med dictionary. Looking for hope...

One positive - the friends I have made from all walks of life, people who have touched my heart in many ways, most with Parkinson's, but not all...

http://www.parkinsons.ie

4 parkinsons disease. on 16/10/2009, 8:52 am

cathy

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not very positive still struggling.fourteen years and still wont accept .anyway why should i who wants this block around your neck .somebody give me a good thought if that is possible .i will send a nicer message next time
cathy

5 A new forum! on 18/1/2009, 7:35 pm

Ann

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Welcome! It is up to you to start the ball rolling - and hopefully we will get plenty of debate on all aspects of dealing with Parkinson's.

To start, my user name is currently "Admin" - will change that soon! I have been walking the road with Parkinson's now for 12 years, with ups and downs along the way. I won't bore you with the details, but the one thing I have learned during those often difficult times was that the more you know about Parkinson's and the various treatment options, and the sooner you join a support group, the better your life with Parkinson's -the unwelcome guest - will be.

Very Happy

http://www.parkinsons.ie

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